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Saturday, October 30, 2010
Taming the PHR
One in 14 Americans has a personal Health Record (PHR). But, according to Mark A. Rothstein, J.D., Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine, there are a number of critical privacy issues related to PHRs that
have not yet been resolved.
These issue include:
The ability of PHR sponsors to sell health information for commercial purposes
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Inadequate security built into the PHR, making it vulnerable to hackers
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The ‘mobility’ of PHRs – which are kept on consumer desktops, laptops and mobile devices – requires special security
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The growing problem of medical identity theft (as of 2010, 1.5 million Americans have been victims, with an overall cost of $26 billion)
Mr. Rothstein is an advocate for specific regulation to address these PHR-related privacy issues. His recommendations include:
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A set of uniform privacy and security rules should apply to all PHRs
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HHS needs to commit resources to research and develop technologies to sequester sensitive information
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All disclosures from PHRs to third parties (employers, insurers) should require a separate, explicit consent
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Increased consumer education about the privacy issues with PHRs
To learn more about privacy issues with PHRs and fair information practices, join us
for Mark Rothstein’s keynote presentation, "Privacy, Portability, and the Future of Health Records," at this year’s Institute for Behavioral Health Informatics.
Sincerely,
John F. Talbot, Ph.D. Executive Vice President, OPEN MINDS
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To read more about
the privacy issues associated with personal health records, see: Where Are We With PHRs & Privacy?
all members
This is free for the next sixty days to all registered
OPEN MINDS Circle members.
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