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July 2006
 Federal Autism Activities Funding for Research Has Increased, but
Agencies Need to Resolve Surveillance Challenges
The National Institutes of Health and Centers for Disease Control
and Prevention (CDC) have undertaken a range of autism activities,
and the agencies reported that funding of autism activities
has increased. CDC officials believe that a 2003 change in the
U.S. Department of Educations (Education) interpretation of relevant
federal privacy law has hindered CDCs ability to use this
methodology to determine the prevalence of autism. Education stated
that the law does not allow CDC to access these records without
written parental consent. A 2003 law required the U.S. Department of
Health and Human Services and Education to
submit a report to the Congress by June 2005 describing ways to
overcome the challenges CDC faces in obtaining education records. As
of June 2006, CDC and Education had not agreed on options for
overcoming these challenges and could not estimate when the report
would be completed.
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