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February 2006
 Introduction: Papers from the National Institutes of Health State-of-the-Science Conference on Improving End-of-Life Care This introduces conference topics:
- What defines the transition to end of life?
- What outcome variables are important indicators for the quality of
the end-of-life experience for the dying person and the surviving loved ones?
- What patient, family and healthcare system factors are associated with improved or worsened outcomes?
- What processes and interventions are associated with improved or worsened outcomes?
- What are future research directions for improving end-of-life care?
Conference findings:
- Ambiguity surrounds the definition of end-of-life care, which leads to confusions
- End-of-life care is fragmented among providers
- Current care includes untested interventions
- Demographic subgroups experience end-of-life differently and the differences remain poorly understood
- Medicare hospice benefits limit the range of interventions needed by many persons at end of life
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