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February, 2001
Department of Health and Human
Services
Office of Inspector General
Younger Nursing Facility
Residents With Mental Illness: An Unidentified Population
This inspection is one in a series of Office of
Inspector General reports on individuals with mental illness in
nursing facilities. A companion to this report, "Younger
Nursing Home Residents with Mental Illness: Pre-Admission
Screening and Resident Review Implementation and Oversight"
(OEI 05-99-00700) examines the admission and mental health
screenings of Medicaid beneficiaries, ages 22-64, who have a
serious mental illness and reside in nursing facilities. In that
study we found that State implementation of Pre-Admission
Screening and Resident Review (PASRR) systems, the primary
mechanism by which individuals with mental illness in nursing
facilities are monitored, is inadequate to identify whether
younger individuals with mental illness are appropriately
screened, evaluated and placed in nursing facilities.
This report attempts to ascertain the extent to
which younger individuals with mental illness reside in nursing
facilities. In addition, we wanted to identify the amount of
Medicaid funds spent to care for this population. The national
average for percentage of individuals in nursing facilities being
treated for mental illness is unknown. A recent review of the
National Nursing Home Surveys estimates that in 1995, there were
approximately 12,000 nursing facility residents under age 65 with
a primary mental illness diagnosis. We believe this figure may not
accurately reflect the number of younger nursing facility
residents with serious mental illness.
The 1999 Olmstead v. L.C. Supreme Court decision
asserted that States are obliged to administer their services,
programs, and activities to individuals with disabilities in the
"most integrated setting" appropriate to their needs.
Olmstead challenges States to prevent and correct inappropriate
institutionalization and to review intake and admissions
procedures to assure that individuals are served in the most
integrated setting appropriate.
Federal Data Sources
The Health Care Financing Administrations (HCFA)
Medicaid Statistical Information System (MSIS) collects claims and
eligibility data for medical services reimbursed with Title XIX
funds. Its purpose is to "collect, manage, analyze and
disseminate information on eligibles, recipients, utilization and
payment for services covered by State Medicaid programs."
The HCFA Minimum Data Set (MDS) collects
resident assessment information "to aid in the survey and
certification of Medicare/Medicaid long-term care facilities and
to study the effectiveness and quality of care given in those
facilities." The MDS is also intended to "support
regulatory, reimbursement, policy, and research functions."
To identify the number of nursing facility
residents between the ages of 22 and 64 with a severe mental
illness, we examined MSIS and MDS data and conducted a 51 State
survey. 
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